Welcome

Solid experts will not only learn about potential applications in the healthcare industry during this session. As with the first Solid Symposium, this session is designed for non-Solid experts interested in the application of decentralized data storage solutions in the healthcare field.

It is an ideal opportunity to bring together recent research about descentralized data structures in healthcare in general, and solid applications in particular. Latest research results and use cases from academia and industry will be presented. Data management for genomic information, machine-learning applications, and digital twins are examples of these applications.

Posters

Posters about Solid applications in health care are welcome. Please visit the Symposium's poster session for more details

Organizers

Elfi Goesaert, R&D researcher & project lead at VITO

Juan G. Diaz Ochoa, (WebID), Cheif Scientist at PERMEDIQ GmbH & QuiBiQ GmbH

Abstracts

Day 1

Salus.Coop: Data cooperatives for health data

Javier Creus

Changes in the capacities and demands of citizens, data-driven innovations and technological developments in research invite us to reconsider the role of citizens in the healthcare sector, both at individual and collective levels. Mobile World Capital Barcelona Foundation and Ideas for Change have investigated how such roles can be reconfigured to accelerate research and innovation in healthcare, and thus deliver positive social impact. The goal of the collaboration agreement was to explore the viability of a citizen-driven model of collaborative governance and management of health data

Related Publications

Project summary.

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Aligning Data Governance models with SOLID technology in a healthcare context

Charlotte De Clerck

In the "We Are" project, health and lifestyle information will be shared through a SOLID platform with overarching access management and governance, with special attention to a participative governance approach. In a study, we analyzed different governance models, how they align with the SOLID vision and how they fit in the We Are project. We will discuss the methodology to come to the chosen approach for the "We Are" project.

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Improving interoperability of personal dental data while upholding privacy

Hugo Lebredo Bujan & Jose Emilio Labra Gayo

WESO Institute, University of Oviedo

We are going to discuss an architecture that allows patients to have control over their dental data, keeping it constantly updated. Patients can share this data with several dental clinic systems that can automatically consume them. The fundamental concepts on which it is based include decoupling between the data and the applications that wish to consume them, thanks to the decentralized storage of Personal Online Data stores (PODs). The information is stored in Resource Description Framework (RDF) along with Shape Expressions that define the data topology, achieving interoperability.

Related Publications

A Decentralized Architecture for Semantic Interoperability of Personal Dental Data Based on FHIR

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Day 2

Mirjam van Reisen & Rens Kievit

The Virus Outbreak Data Network (VODAN) is a collective of researchers, health practitioners and decision-makers in health who use semantically annotated machine actionable data for the recording of Patient Health records, to improve services at point of care, resolve issue of bias in health AI tooling by focusing on the generation of secure data held in residence and with high granularity and diversity including from poorly connected geographies. The data architecture allows for de-novo FAIR data production with data-ownership where data is created with local regulatory compliance (OLR). The architecture provides an ethical and sustainable framework for interoperability and re-use with third party customers invited to the data based on federated decision and value addition offering to the facilities that produce the data.

In this session we will introduce the VODAN architecture using real- world use cases, and discuss ideas to extend the architecture to further incorporate aspects from the Solid philosophy.

Related Publications